I have already spent money on blood work ($500), air fare, rental car, skirts/yoga pants to wear after the surgery and the first initial treatment (7k). I have about $1400 left and have to once again pay for blood work (as the tests are only good according to law for 6 months) two more times of travel, rental car, hotel and plasma at $750 each time. Needless to say, we have fallen short-very short.
I was lying on the exam table in complete despair. I was just laid off from work, fundraising for the last 8 months was exhausting and took a toll, and without all three treatments, all of this has been for nothing. I could not help but cry. All my hopes were vanished in that one moment.
I could not help but look around at people in the streets, in cars and in restaurants and envy them for their normality. I could not believe that this is my life and my challenge.
The worst part, remission has been seen to last 9 months to 3 years at which point, this will all have to be done again. I need to get a job just to stay somewhat out of pain.
Today is day 4. I cannot walk without my compression garment as I have burning and a heavy weight with pain from where he harvested the stem cells. The area of the injections is swollen, itchy and in pain. I am trying to take it easy and stay hopeful. I am not seeing any results so far, but realize that could take six weeks.
My next appointment is scheduled for November 14th. Hopefully I will have enough money raised or get an awesome job offer before then to enable me to go. I have to keep remembering that I am paving the way to help Dr. Newman gather enough proof and research to get grants to hopefully one day enable my daughters to have a cure or at least their insurance pay for the treatment for this horrible disease. ~S
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| Stomach after harvesting stem cells. Very painful and swollen. |
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| Inflammation treatment for the body. You just stick your hand in the machine. |
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