Monday

Today was insane.

Ash came home at 10:30, I had an interview about 40 minutes away at noon, we rushed Matt to work at one, the girls had two friends come over at 3:30, homework, dinner, chores and bed. As my dear cousin said today, "Raising kids is like being pecked to death by chickens." Haha!

I am thinking of writing a book. There, I said it. Perhaps now I will actually do it.

I belong to a support group that doctor Newman put together of LS patients. Before this group, I knew only one person with the same disease (in Idaho). I am grateful for these ladies. They make me laugh, are the only people who can really understand what I go through and are my rock.

Here are some descriptive words of LS that we have been throwing around. Some make me laugh because they couldn't be more true.

LS is like: A blow torch on your rear, sitting on a cactus, red ants chewing at my..., sitting on crushed glass, thumb tacks being pushed into the nerves, acid being poured on my........., and a yeast infection 24/7.

Not a great way to live. Not to mention the fusing and mutilation of the structures. It is a horrific disease and I pray, hope and dream, one day there will be awareness, research and funding so insurance companies can help with the stem cell therapy and so many women will not suffer in silence. We are toying with the idea of going around and doing some public speaking to women about LS - great things are in store!

On an end note, my mothering story for today is...
Rushing home from my husband's work, with my 6 year old in the backseat (she's trying to hold in a bowel movement, while also saying she felt like barfing), trying to not barf myself since I had left the house with only coffee in my stomach, hearing her say, "Mom, drive fast! How far away are we?! It's coming out!" Bahahahaha! Kids!

~S