I have finished 3 stem cell procedures, but am not in remission and will not go into remission which is a hard thing to accept. While my itching that is associated with the disease is nearly gone (90% better), my white patches and severe skin tearing is very active as I have yet to go without a fissure in years.
Don't get me wrong, not feeling like I have a yeast infection 24/7 is awesome! But having skin tear from sliding over on a seat, having sex, and wiping is miserable. I still can't sit on a hard surface and can't sit for more than 15 to 30 minutes on a soft surface. The fissures cause stinging, burning, itching and shooting pains. All of which cause chronic pain. I would much rather have itching that open wounds any day.
The skin did get stronger with each procedure and I believe with two more treatments, the skin would be strong enough for the tearing to stop. However, to harvest more stem cells it would be an additional $3,500 plus $600 travel. If I went in for a 5th treatment after that, it would be $750 (for prp since I would have stem cells for three treatments from the $3500). Does that make sense?
It was emotionally draining to fundraise the first time and I am not sure I can go through that again. I have accepted that my life will consist of chronic pain, I will not go into remission and in one to three years, I will probably be back to square one. My clitoris is gone from the disease as are many other structures of my female anatomy with saddens me to no end.
I was in so much pain a few weeks ago from a fissure, that I actually contemplated cutting just to deflect the pain from my crotch. I would not actually do it, but thinking about it scared me.
It seems a shame to come this far not to finish, but I feel like I can't ask people to help me out again. Why do I deserve it? What is so special about me? ~S
